This is a new place for people coming from r/cfs.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.
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Sorry if im way off but are you sure its from covid? Sounds more like some sort of lyme disease? But hope you recover.
No this is post covid, I've had a bunch testing done, but they are very similar. And I didn't live in a place with Lyme diease. I have other illnesses but the main issues are post covid.
Ah damn you got hit really hard then. The wife has a mini long covid. Smell and taste are still, after 2 years, funky as she says. Almost everything with some egg product taste bad and smell is still weird. But she can live with that she says. But all your symptoms….damn. Hope you find some kind of solution.
Congratulations for reclaiming a somewhat normal life!
What is ALA? And what is the rationale of taking Gabapentin?
ME/CFS has a bunch of different causes, for sure, so we all have to find our own way to somewhat normality.
Thank you! ALA is Alpha lipoic acid, it has been shown to reduce neuropathy in sensory and autonomic nerve systems. Its also an amino acid in the ATP reaction. Gabapentin is mostly for migraines and brain fog and neurological functions it can Also help with vagus nerve inflammation and neurons in the gut . I also had epilepsy triggered by covid so it helps with that too for me.
Being a coenzym in the pyruvate dehydrogenase complex, alpha lipoic acid seems to be a good way to booster mitochondrial function. Sounds interesting. Thank you.
How did you figure out your allergies/intolerances? I've looked at testing but most look scammy.
By way of elimination, sorta like the fodmap diet but for environment factors. Symptoms that increase for everyone I have talked to are brain fog, neuropathy, lightheadedness. But yeah just remove the thing from your environment for some months then reintroduce it to see if you get worst. I highly suggest fragrance as a start as there are research studies showing it is common in people with post viral illnesses. You can also go an allergist and get a spot test done but it may not be conclusive.
