Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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This is a new place for people coming from r/cfs.

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

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Was bed bound with post covid for 2-1\2 years now I have a somewhat normal life. (lemmy.blahaj.zone)

submitted 9 months ago by [email protected] to c/[email protected]

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So the biggest thing I had to figured out was all my allegeries. Fragrance is the biggest one, its in everything and I can't be around it at all. It took 6 months to get rid of all of it and is a constant effort to keep out of my living space. I have met multiple other people who has this same allergy. Cutting gluten out of my diet also helped a lot. HEPA 13 air purifiers are a must. And these are the meds I'm currently on: Gabapentin 300mgx3 daily ALA 300mgx3 daily Tumeric 500mgx3 daily Benadryl liquid gels 25mgx3 daily Loratadine 10mgx1 daily Azelastine HCI 205.5 mcg spray 4 times daily Probotics 1x daily Bio-identical hormones to correct hormone imbalance I smoke tar free cigarettes for brain fog and nausea Microdose of psilocybin 400mg of fungal material 4 times a week for migraines and brain fog. Let me know if you have any questions. I know how awful it feels to have this with no end in sight.

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[–] [email protected] 3 points 9 months ago (1 children)

Sorry if im way off but are you sure its from covid? Sounds more like some sort of lyme disease? But hope you recover.

[–] [email protected] 1 points 9 months ago (1 children)

No this is post covid, I've had a bunch testing done, but they are very similar. And I didn't live in a place with Lyme diease. I have other illnesses but the main issues are post covid.

[–] [email protected] 1 points 9 months ago

Ah damn you got hit really hard then. The wife has a mini long covid. Smell and taste are still, after 2 years, funky as she says. Almost everything with some egg product taste bad and smell is still weird. But she can live with that she says. But all your symptoms….damn. Hope you find some kind of solution.