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NHS data platform may be undermined by lack of public trust, warn campaigners
(www.theguardian.com)
This is the best summary I could come up with:
The NHS’s new data platform could be derailed by a lack of public trust because patients are being denied the chance to opt out of it sharing their personal medical records, campaigners claim.
NHS England will announce on Tuesday that it is handing the £480m contract to operate the new software to the US spy tech firm Palantir, sparking a backlash over privacy and its “murky” past.
But the announcement has been overshadowed by warnings from MPs, doctors and privacy campaigners that patients will have no right to refuse permission for details of their medical history being shared between different NHS bodies through the federated data platform (FDP).
When NHS England published FAQs about the platform in August, it said: “The national data opt-out policy sets when a person can opt out of their confidential patient information being used for purposes other than their individual care for planning and research.
He pledged that, as part of efforts to ensure public trust in how their data will be used by the FDP, “we … will be clear about people’s rights and choice to opt out (where applicable)”.
Lord Markham also referenced the NHS’s existing national data opt-out policy, which sets out when someone can choose not to let their sensitive personal information be used more widely in the health service.
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