this post was submitted on 07 Nov 2023
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Completely blind later is very much worse IMO.
Knowing what you're missing, and being able to do nothing about it, really sucks, especially full blindness, not just legally blind.
Don't get me wrong, legally blind (just seeing shapes and stuff) still sucks, it's just hard to compare to full blindness.
I say this as my brother's medical situation is slowly causing his retina to detach which will lead to full blindness. He's a graphic designer by education. It's cruel. He's not quite legally blind yet, he can still drive in good conditions, but it's degenerative and getting worse, and will not get better, only worse. The only treatment is to slow the deterioration, nothing will prevent or reverse it.
I'm sorry to hear that. That really sucks.
Myself and my SO are helping him and his wife deal with it. We moved into a shared home and we're all here for whatever he needs.
We moved in well in advance of him losing full vision so he can learn the layout of the house visually and get to the point of being able to navigate the house with his eyes closed.
We put in Google home devices all over so we can use announcements/paging to call out if he needs help. More people in the house means more people home more often, so there's a better chance someone is nearby to help when help is needed.
It wasn't cheap to buy a house when we did, but we're doing ok. We have a plan.
I wish you all the best for dealing with this.
Thank you.