this post was submitted on 17 Feb 2024
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Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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This is a new place for people coming from r/cfs.

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

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A while ago I moved in with my parents to relieve my wife from having to juggle two kids, the household, her elderly parents, her work and me. And my parents have this fancy digital thermostat I can control from my smartphone.

At the start I had it set to 17° C. But by now I have it at 15° to feel comfortable. Granted, I lay under a blanket most of the time. But higher temperatures also feel bad on exposed parts of my body.

Kind of feels like my body is slowly shutting down. It's a little bit unsettling. No idea what I will do in the summer. We only have a radiator and no AC.

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[–] [email protected] 4 points 8 months ago

Jein ;-)

Warmth intolerance is one of my tell tale symptoms that I'm really bad, especially during night.

On the other hand I found that I'm far more intolerant to cold than before – ½ hour below 10° C, even with proper clothing, and I risk a crash. Below 0° C, and I crash for shure.

[–] [email protected] 2 points 8 months ago (1 children)

So you left your wife alone so she can juggle two kids, the household, her elderly parents and work, so that you can lay under a blanket most of the time?

I think i am misreading your statement :/

[–] [email protected] 3 points 8 months ago (1 children)

Look at the community you're in. I literally can't do much else. If I was at home she would have to put up with me as well.

[–] [email protected] 3 points 8 months ago (1 children)

Holy Shit I am sorry. I didnt really look and thought it was "asklemmy" or "unpopular opinion" without checking. I am very sorry for that negative comment. Should have checked the community before posting.

[–] [email protected] 2 points 8 months ago

Don't worry. 😅