this post was submitted on 04 Jan 2024
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[–] [email protected] 69 points 10 months ago (18 children)

Oh wtf this was one of the drugs people used to poison themselves with? I was prescribed this a month ago because the rheumatologist told me is the safest drug for auto immune issues although I still need to take mehtylprednisolone every few months due to spinal inflammation that messes with nerves.

[–] [email protected] 10 points 10 months ago (5 children)

Take the recommended dose and you'll be fine, just don't go over because it's easy to OD with.

You might also go blind, but that's a future you problem

[–] [email protected] 2 points 10 months ago (1 children)

Yeah my rheumatologist did mention that to me but he said it takes years and years to start to form and is easy to revert. He just said to get eyes checked every year

[–] [email protected] 2 points 10 months ago (1 children)

It is most certainly not easy to revert. I was on it for 15 years and now have permanent, irreversible damage to my macular. I also can’t take hydroxychloroquine at all anymore because I will go blind.

But my doctors messed up and didn’t checked my eyes for over a decade. Once the usual optician spotted it, it was too late. If you see an ophthalmologist every year, they should spot any issue before it’s too late.

[–] [email protected] 2 points 10 months ago (1 children)

Yeah sorry that's what I meant, catching it before it's too late. I'm really really sorry you're experiencing this, that is terrible.

[–] [email protected] 1 points 10 months ago (1 children)

Thanks. I was angry for ages, now it’s just another lupus gift - nothing to be done except get on with it. Wishing you many more good days than bad!

[–] [email protected] 1 points 10 months ago

Same goes to you!

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