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Are any of the DNA testing companies trustworthy? (lemmy.world)

submitted 1 year ago by [email protected] to c/[email protected]

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So obviously we're all on Lemmy for a complicated combination of reasons, but we all likely share some common ground, namely...

need for privacy
need to own/control/access the data we produce
healthy skepticism about the trustworthiness of for-profit corporations, in general

So if we don't want meta to know even innocuous things; like how many times/when we message our grandma, and we don't google to know when we're searching for remedies to a rash, and we don't want reddit to... Well we just don't want reddit - we don't want them to profit from or weaponize that data against us in a myriad ways.

We also don't want them artificially removing features and creating tiered layers of service/value hidden behind a paywall (I understand this is very present in the some of the commercially available DNA services).

So that brings me to DNA testing services. Since they started to emerge in the mainstream they were immediately an interesting, exciting novelty and I also knew it was data I wouldn't feel safe trusting with a for-profit org - with broken systems like law enforcement and health insurers on speed dial and just salivating for the goodies they collect.

So all that considered, any groups that provide this type of service that you do trust/use, and why?

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[–] [email protected] 2 points 1 year ago

I just want to cosign on this. I found out that I have Lynch syndrome, which carries an 80% chance of colon cancer and 60% likelihood of endometrial cancer. I thought I was prepared to hear that I had it, but I wasn't. When I heard my test was positive, I freaked out. I was really glad to have a licensed genetics counselor deliver the news and talk with me in the following weeks and months as I adjusted.