Chronic Illness

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A community for chronically ill people.

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Be excellent to each other
Absolutely no ableism, although good faith questions that take an ableist stance will be left up pending moderator discretion.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

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That feeling when you've read up more on your chronic illness than your GP has (lemmy.world)

submitted 3 months ago by [email protected] to c/[email protected]

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[–] [email protected] -1 points 3 months ago* (last edited 3 months ago) (1 children)

I'm kind of bewildered about how the diagnosis process went. You self diagnosed without consulting your gp? Because in my understanding you go to your doctor to be diagnosed.

Of course you can bring up your ideas as to what it is, but it's a bit tall if you come up with a diagnose and you're not correct. (I thought I had frozen shoulder once,I didn't).

If you go symptom shopping and WebMD yourself to a diagnosis, it's not per se what's the matter with you.

If it's something very obscure it's not weird for a general practitioner to have to look it up, he's not a specialist. That where the books are for. He's probably looking it up in order to respect your line of thinking

Not to say there isn't any bad gp's out there but please don't think your methodology and research is better than a professional is just mad. A diagnose is reached through consensus, and if that isn't reached you don't have said illness.

[–] [email protected] 1 points 3 months ago

People don’t usually have the same doctor for their whole life. So no matter how long you have been living with an illness, you do find yourself seeing people you have never met before and sometimes having weird experiences just through probability. No one is “symptom shopping” here, we’re just describing a common experience, which is that it’s a bit jarring when you have a health problem and the doctor you go to see for it doesn’t know how to help you with it.