0
Introduce yourself here if you haven't already done so!
(lemmy.world)
This community is a gathering place for all those affected by neurodegenerative diseases. Patients, family, friends and caregivers are welcome. Share info, ask questions, or vent about your day. Whatever you'd like to talk about, we're here to listen.
COMMUNITY RULES
We follow the Mastodon Code of Conduct in this community.
Please be kind and supportive as you interact with others.
Do not ask for or offer medical advice. This is a community for support and encouragement only.
PARTNERED COMMUNITIES
I was a really good candidate for the Huntington's trials they were doing near me, too. Presymptomatic with a symptomatic mom that I could bring along.They were practically drooling while talking to me about it, but unfortunately it was too far to travel once a week. The trial ended up being cancelled so it didn't matter. It's nice when the doctor's are fascinated by your condition.