this post was submitted on 21 Nov 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I got some new wet wipes and will henceforth usher in a brand new age of cleanliness!

Oh, and my Christmas present for my wife arrived and it's lovely seeing her wonder what's in it. It's a T-Rex skull replica. And I ordered at the corded time because now it's sold out.

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[–] [email protected] 3 points 1 month ago

I had to put my eldest dog down today, a 14 year old lab. I'd known it was coming for a year and she got worse within the last few weeks weeks. We had to schedule it on Saturday.

My wife is a vet tech, so we get some special treatment in that manner. Her boss came out to our home this morning and she passed peacefully surrounded by her family.

So this is a weird reply because my week was utter shit.

But it's a victory for me because my system has been a mess all week. I can barely eat and drink.

In prior years, though?

The anxiety and stress of it all would have made me bedridden for a week. Possibly in the ER.

I'm so much better now at understanding what causes my flare ups and not letting myself fuel them more with anxiety.

[–] [email protected] 2 points 1 month ago

Made cookies yesterday, so that was good. I like baking, but I can't do it as often as I'd like.