Fibromyalgia

Hello all, checking in to see how y'all are doing. I've had a few good daysbunt now I'm stupidly pushing a fatigue flare back to help a young family member before he goes home. Crash is incoming next week, a day or two after the kid leaves.

It’s been nearly 15 years or maybe even more since I’ve started trying to find help for all my symptoms. Mostly I ended up feeling crazy… (“Am I gaslighting myself? I must be.”) So much happens internally that you can’t see, can’t share. You sound like you have the flu 49x a year. People don’t understand just how tired you are. What the aches and pains are like… so constant, drumming, sharp, dull, here today and over there tomorrow! Everything is worse because nothing makes sense and no one understands, even the ones that really, really try.

I don’t know how to feel about the diagnosis yet. I have a lot of reading to do, to start. Any favorite resources, books, educational materials (for myself or my partner?). I’d love to hear how others cope, too, if anyone feels like sharing. Feels like I’m the Queen of Random Self-Care Interventions and always doing something or another for my physical and mental health. Just hearing from others would be awesome; it’s so strange to find a word exists for all of these symptoms, all this time.

I was tired this weekend so I stayed in and rested. Now I’m at work today and everything is aching. I think resting on the couch let everything tighten back up? I hate when I do this and know better. Fibro paradox. Sorry to rant but no one else gets it. 😔

Sounds almost crazy saying that and to be honest I’m not really sure how to explain it. I don’t want this to sound like I’m complaining for what could be perceived as mild symptoms. I want to use this post mostly to laugh at my ignorance and maybe as a warning to others. For some context I do have moderate ADHD and I’ve definitely been over working myself these past few years. I have been having my regular fibromyalgia symptoms throughout this time but decided to ignore it. Telling myself I had to get through the day and I could take some pain killers later. Now I guess I’ve been doing this so much that I “forgot” all about my fibromyalgia. I ignored it and just pushed through, to the point that I’ve been able to not notice my lingering chronic pain as much. Sounds great right, I somehow managed to mind over matter this. Well the inevitable happened. For the past months I’ve been having the worst symptoms I’ve ever experienced. My chronic pain reached a point that my bad day pain killers felt like I took a Tylenol instead, my fatigue has me feeling like instead of sleeping my body decided to participate in some sort of triathlon, and the muscle spasms and my pain sensitivity have reached a whole new high. I was going crazy trying to figure out what was going on. It wasn’t until I started venting about my back pain to a co-worker who asked why I had such high dosage pain killers that I remembered all about my fibromyalgia, and realized I’ve been ignoring it for a little over a year. So yeah, all that to say don’t ignore your symptoms as they will come back with a vengeance.

Hello everyone! I just wanted to get this community created so that we have a place to be while Reddit will be going dark and also if you decide you do not want to use Reddit anymore.

Reddit mods, I will make you mods here and just not do anything mod wise myself and basically just hand it off to y’all. Just wanted to get it going asap.