this post was submitted on 22 Sep 2024
33 points (88.4% liked)

Ask Me Anything

2008 readers
18 users here now

Ask Me Anything (AMA) Community Rules and Guidelines

This is the lemmy.ca AmA.

Welcome to the Ask Me Anything (AMA) community! This is a space where individuals from various backgrounds come together to engage in open and informative discussions. To ensure a respectful, enjoyable, and inclusive experience for everyone involved, we have established the following rules and guidelines:

  1. Be Civil and Respectful:

    • Treat all participants with respect, regardless of their background, expertise, or opinions. Personal attacks, insults, or derogatory language will not be tolerated.
    • Engage in constructive conversations, even if you disagree with the person answering the questions. Focus on addressing their responses or providing alternative viewpoints without resorting to hostility.
    • Remember that the participants are sharing their knowledge and experiences voluntarily. Appreciate their time and effort.
  2. Practice Politeness and Courtesy:

    • Use polite and considerate language when asking questions or engaging in discussions.
    • Be patient and understanding if the person answering takes time to respond. They may receive a high volume of questions.
    • Avoid spamming or repeating the same question multiple times. Give others a chance to ask their questions as well.

-Use NSFW and trigger warning TW in brackets if you talk about sensitive subject.

  1. Respect Boundaries and Privacy:

    • Do not ask personal or invasive questions unless the participant explicitly invites such queries.
    • If a participant declines to answer a question or requests to move on from a topic, respect their boundaries without pressuring them for a response.
    • Avoid sharing personal information or disclosing sensitive details about yourself or others.
  2. Be Inclusive and Stand Against Discrimination:

    • Respect diverse perspectives and backgrounds. Discrimination, including racism, homophobia, and transphobia, will not be tolerated.
    • Foster an environment that welcomes individuals of all races, genders, sexual orientations, religions, and identities.
    • Be mindful of your language and the potential impact it may have on others. Avoid offensive slurs or derogatory terms.
  3. Avoid Spam and Irrelevant Questions:

    • Ensure your questions are relevant to the participant's expertise or field of knowledge.
    • Avoid posting low-quality or repetitive questions that add little value to the discussion.
    • Respect the purpose of the AMA and avoid using it solely for self-promotion or advertising.
  4. Engage in Meaningful Discussions:

    • Prioritize thought-provoking and insightful questions that foster engaging conversations.
    • Be open to different perspectives and use the AMA as an opportunity to learn and broaden your understanding.
    • Jokes are allowed as long as they are respectful, appropriate, and do not target or marginalize specific individuals or groups. -If you are sarcastic, we recommend to use /s to be sure there is no confusion about your intention. Fake sarcasm will be found.

Remember, these rules and guidelines are in place to ensure a positive and informative environment for all participants. Failure to comply may result in 3 strikes warnings, temporary restrictions, or permanent bans at the discretion of the moderators.

in the future, a mod check and balance system might be implemented . Subject to change : [You might appeal your ban by contacting a special appointed moderator to judge if the ban was abusive.

Special appointed mod can create jury like conversation with randomly chosen users with jury votes to decide if bans are legit or not.]

Thank you for being a part of the Ask Me Anything (AMA) community. Let's engage in enlightening discussions, share knowledge, and create an inclusive space that values respect and diversity!

Friendly communities :

founded 1 year ago
MODERATORS
 

I have been narcoleptic since high school. I was only diagnosed with it 8 years ago (I am ~40), so I actually lived with it for around ~15 years undiagnosed. In that time, I graduated high school, college, and went into a career.

So, with the preliminaries out of the way, and in a effort to contribute to the AMA comm:

AMA

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 5 points 2 months ago* (last edited 2 months ago) (2 children)

When was the last time you drove a motor vehicle?

I only really ask because I had an episode of syncope (which is the manly way to say I fainted) in 2020. When I finally got in to see a neurologist, he was very concerned that nobody else (my GP or cardiologist, for instance) had told me not to drive until either we had an explanation why the syncope and a reasonable expectation it wouldn't happen again unexpectedly, or 6 months had passed without an episode.

I'm only guessing that you don't and/or can't drive, but it would make sense.

[–] [email protected] 7 points 2 months ago (1 children)

I actually am at a level where, as long as I’m medicated, and I’ve gotten enough sleep, I’m fine to drive in most circumstances. I also know my triggers (what makes me feels sleepy), limits (how far can I go, etc), and tells (how I know the sleep attack is oncoming). I also have techniques for undoing my triggers (cold air, for example), and also ways to stimulate the part of my brain that controls that sleepy feeling.

However, when I was diagnosed, my doctor did not tell me that and he well should have because I was not safe and it was a fucking wonder I didn’t kill myself or others. People said I had a guardian angel, but I think it was really just my conscious mind keeping me me from crashing in between struggling against the sleep demon.

[–] [email protected] 4 points 2 months ago (1 children)

Good to hear you're able to drive! Fortunately I didn't have any syncope after that one time, but I do sometimes feel symptoms that might be syncope coming on. And if I get that while driving, I always pull over somewhere and do the machinations to fix it.

[–] [email protected] 4 points 2 months ago (1 children)

Yeah, driving is pretty essential where I live. It sounds like you have coping mechanisms too. So what causes syncope?

[–] [email protected] 4 points 2 months ago (1 children)

"Dysautonomia." Which my doctor hasn't stuck his neck out so far as to say was from COVID, but it was. Heh.

I was an "early adopter" of COVID, so there weren't tests yet when I started having symptoms, so I guess take it with a grain of salt because I don't have a positive test result. But all the weird symptoms I had match up with COVID -- though to be fair it's really wild the range of different things COVID can do to you -- and there were visitors from the London office at my workplace just a few weeks before I had that syncope and subsequently got long-term sick. (I'm in the U.S.)

[–] [email protected] 3 points 2 months ago

though to be fair it's really wild the range of different things COVID can do to you

My mom still has problems with brain fog and her sense of taste after having COVID.

Dysautonomia

Wow, that sounds like the disease you have when something’s wrong with your brain and they don’t know what.

[–] [email protected] 3 points 2 months ago

Most people with narcolepsy can still drive.